This wonderful, handsome, young boy’s name is Josef.
In 2012 Josef (aged 15) was diagnosed with cavernomas. Cavernomas are described, by professionals, as clusters of blood vessels (that look like blackberries), they’re really quite dangerous and life-changing.
A few years ago Joe developed a bunch of awful headaches and migraines, he’d have them every day and be in a lot of pain. He’d go dizzy a lot and be very tired. The doctors didn’t look further into this.
In 2012 he had numerous major seizures that left him in an induced coma, to be later diagnosed with Cavernomas.
Joe has 14 cavernomas on his brain.
Joe is currently on medication but his seizures still continue to this day, some worse than others. If the seizures worsened, the blood vessels in his brain could burst. Which would be extremely life-threatening.
This condition and it’s symptoms are extremely rare, estimated to occur in 1 in 400,000 people in the UK alone.
The past 2 years have been a tough journey for Joe, his family and his friends, with his current and future plans having to change dramatically.. he can’t be alone, he can’t go out alone as his seizures could occur at any time.
I’m running the 5k color run in August for the Cavernomas charity to raise money and awareness.
I don’t have many followers at all, but i’m trying my best to do something.
It’d mean a lot to him, his family and myself if you could visit my donation page here and donate, even the smallest amount will help <3
If you can’t donate, please reblog and spread the word, thankyou so much <3